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Is Sciofa Firinne Ar An Balla
~the truth is written on the wall~
Blog 21: For Thurs 08/21/08 - part one 
21st-Aug-2008 04:45 pm
I will try to update more than once a day when I can now.

Things are not good today.  I am currently sitting in her room, listening to our CD
and the respirator, under a window curtain of 1000 paper cranes.

They are taking out the central line - it's not worth the risk of further infection to
keep it in. 

She is no longer responding to any requests or commands, though for just 5
minutes she tried to look at me.  That's the only response since last night.

This morning her fever spiked to 107.  They took drastic measures to lower
her temperature, including using a cold blanket.  It is still high, 102 or
thereabouts.  They don't have any evidence of infection yet, and there is a
theory that the center of the brain (the medulla) that regulates body temperature
may be part of the damage.  They have no good answers and no real
prognosis.  She's still breathing on her own, but more than half of her
respiration is very shallow.  The respiratory alarms go off about every
two to three minutes.  On the up side, they no longer make me jump
constantly.  On the down side, it means that the respiratory syndrome
I described in my last post is a serious ongoing problem.

In good news, the digestive and eliminatory systems are still working.
There was some elevated kidney levels, but still within safe/normal
ranges.  A carotid ultrasound this morning still looked good.
There is still no evidence of further stroke damage or cranial
bleeding, which is good.  For now, all we can do is play a wait and see
game to find out how extensive the midbrain and medulla damage
will be in the long run, and see if she can stay on top of all the
complications long enough to recover from the stroke.

They're going to be putting her on albumin to help with the extra
fluids.  On the bright side, we JUST checked and her temp is now
down to 100, which I consider miraculous, so ....

Keep praying, keep lighting candles, keep folding cranes, keep on
doing all the things that all of you are doing, keep writing me notes
and letters.  Everyone has gone home now, so it's just me and Tali
and lots of beeping and whooshing machines.  More later after
I talk to the doctors again today. If you haven't come to see her
and would like to, drop me a note so I can keep schedules arranged.

Thanks.
Never Tell Me The Odds 2
Comments 
21st-Aug-2008 09:14 pm (UTC)
we went through the fever issue with my stepmother. make sure they keep the cooling blanket on her and that it's -working-.
21st-Aug-2008 09:29 pm (UTC)
*Good thoughts and prayers*

Hang in there. Remember to take care of yourself in the meantime.

22nd-Aug-2008 01:41 am (UTC)
I've been thinking a lot about you both this week. I know that we don't know each other in "real" life, but if you'd like some company, I'd be glad to stop by at some point. I know that might be totally weird, and am more than happy to keep offering support at a distance, but if it gets lonely, feel free to let me know...
22nd-Aug-2008 02:01 am (UTC)
That's really kind of you. Frankly, I'm thrilled for any company, it gets a little stressful here and when I sit by myself for too many hours I've discovered that I can't seem to stop crying, which is definitely not an improvement. Tali would be so touched just to know you offered, so of course you'd be welcome - but please please don't feel obliged. Support up close or at a distance are both equally welcome, thank you.
22nd-Aug-2008 01:47 am (UTC)
I'm sorry I missed a lot of this as it was developing (out of town and mostly off the net). I hope you guys get some good news soon. You are in my thoughts.
22nd-Aug-2008 07:24 am (UTC)
Whew! Glad the temp went back down from the scariest levels and she is
seeming to improve.
You both are in my thoughts and on my list of prayers, and the pile of
cranes is growing. There are alot of folks out here sending along the
good mojo in whatever way they do best, and some of them are doing so
from second or third hand knowledge, friends of friends of friends...
Keep the faith M'dear! Love DOES work miracles!
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